When Eileen Attar was pregnant with her second child in 2016, she felt that this one was different. “After a healthy pregnancy, my husband Chris and I welcomed Brady into the world. Moments after he arrived, we noticed something was terribly wrong: Brady’s feet were raw and missing skin. After two weeks in the NICU and a heartbreaking diagnosis of RDEB, we brought Brady home.”
Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body’s largest organ: the skin. Individuals with EB lack critical proteins that bind the skin’s two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement and wounds that may never heal.
At this year’s Cafe Jordano event, Caruso Family Charities awarded $10,000 to EB Research Partnership in Brady Attar’s name in the hopes of finding a cure for this life-threatening skin disease.